For Siblings Day 2025, Mum Sadia kindly shares her daughters, Yusra and Nusrah’s story with us…
“Nusrah was diagnosed with Dravet syndrome when she was about three years old. It was a difficult and overwhelming time, as we were suddenly thrown into a world of medical appointments, treatments, and constant worry.
“Dravet syndrome is a rare and severe form of epilepsy that affects multiple aspects of Nusrah’s life, from mobility to learning and communication. Over the years, we’ve had to navigate various therapies, medications, and specialist support to help Nusrah manage her condition.
“We were first introduced to Spread a Smile during one of Nusrah’s hospital stays. The charity poster was on the wall, and we decided to explore what they offered. From the very first interaction, we felt a warmth and understanding that was so needed during such a challenging time. The joy and positivity they brought into our lives, especially for Yusra, have been incredible.
“Yusra’s experience as a sibling is one of the most beautiful aspects of Spread a Smile and how they include and support siblings. Yusra, being six years old, has grown up in an environment where much of the focus is on Nusrah ‘s medical needs. She adores her sister, but there are moments when the reality of having a sibling with complex needs can be tough for her. Spread a Smile has given Yusra something just for her—something that acknowledges her feelings, gives her joy, and allows her to be a child without the weight of responsibility.
“Yusra has taken part in online group sessions, interactive activities, and fun virtual events such as arts and crafts, singing, storytelling, magic sessions, LEGO games, drama games and spending time with entertainers who make her laugh. These moments have given her an escape, a space where she is seen and valued in her own right. She loves the creativity of the sessions and always looks forward to them.
“The difference Spread a Smile has made for our family and the impact they have had goes beyond the activities. They have provided us with moments of normality, joy, and respite — things that can be hard to come by when dealing with a complex medical condition. Seeing Nusrah and Yusra smile together, engaged in something fun, is priceless.
“The charity has given Yusra a sense of belonging, helping her understand that she is not alone in her experiences as a sibling of a child with additional needs. She has learnt to be social and creative and outspoken when it comes to taking part in the group sessions as well as the one2one sessions. Most importantly, they have helped Yusra feel special.
“In a world where much of the attention naturally goes to Nusrah’s care, Spread a Smile has ensured that Yusra also feels important, loved, and celebrated. And as parents, that means everything.”
Please help ensure we can continue to support children and young people like Yusra, Nusrah and their families by donating today. Thank you.