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children in hospital

First in-person visit to Wales

780 400 Hannah Myers

We were delighted to make our first ever in-person visit to Wales on Friday 5 June, with a special entertainer visit to Wrexham Maelor Hospital.

Joined by our Chief Executive, Lucy Jackson, our fairy and magicians visited seriously ill children across the paediatric ward and playroom, bringing moments of laughter, connection and joy.

We were also delighted to welcome Wrexham Member of Parliament, Andrew Ranger MP, alongside Members of the Senedd, Ken Skates MS, Sam Rowlands MS, Cristiana Emsley MS and Nigel Williams MS. Together, they spent time with our entertainers and the hospital and play team, seeing first-hand the positive impact that Spread a Smile makes through play, creativity and connection for children and young people in hospital.

The visit marked a special milestone in a partnership that began during the Covid pandemic. Since October 2021, Spread a Smile has delivered dedicated fortnightly virtual entertainment sessions for patients at Wrexham Maelor Hospital, with the play team taking an iPad bed to bed so that children can enjoy one-to-one time with our entertainers. Patients have also joined our virtual group sessions, while long-term patients and their families have been supported through home visits and special gift hampers.

Rebecca Morris, Children’s Ward Manager, said: “Time in hospital can be long and frightening for a child, and the visits from Spread a Smile give our patients something to genuinely look forward to. Having the entertainers here in person was a real treat for the children and their families, and it was wonderful to share the day with our local representatives.”

Lucy Jackson, Chief Executive of Spread a Smile, added: “Wales has been part of Spread a Smile for nearly four years, so to finally be at the bedside in person at Wrexham Maelor means a great deal to us. Watching a child who has been having a tough day light up when a magician or our singing fairy arrives is something I never tire of. 

“Our thanks go to the play team, who have championed this partnership from the very start, and to the children and families who made us so welcome.” 

A special thank you to Andrew Ranger MP, Ken Skates MS, Sam Rowlands MS, Cristiana Emsley MS and Nigel Williams MS. Also, to the Play Team and staff at Wrexham Maelor for helping to make the day such a success.

Niko

Meet Niko…

1024 683 Susie

In February 2022 Niko’s, and his family’s, world was flipped upside down when at the age of just two years old, Niko was diagnosed with Acute Lymphoblastic Leukaemia, an aggressive type of blood cancer.

Niko was admitted to Great Ormond Street Hospital where he immediately received blood tests, blood product transfusions and other urgent procedures including genetic testing, bone marrow tests, lumbar punctures, blood tests, antibiotics, steroids and high intensity chemotherapy. The family were told that Niko’s treatment plan would last at least 3 years and that it would involve 13 rounds of Chemotherapy. A long and draining future lay ahead.

By mid March 2022, Niko’s treatment was so intense, with so many negative side effects, that he stopped walking, playing and being able to move independently. After a period of investigation and tests, adjustments to his medication, consultations with physiotherapy and special aids, Niko recovered some of his mobility around the end of April. His mobility however, still isn’t 100%. It was an extremely scary and emotional time for the family. Niko continues to be very weak, gets very tired after just a few steps and his legs often just give way underneath him meaning that he falls over a lot.

There then followed other phases of treatment which once again involved a lot of hospital admissions and more chemotherapy, during which time Niko lost his hair for the fourth time. It was a relief to find out at the end of this phase that although by no means the end of the road, Niko was considered to be in remission.

Since September, Niko has been having daily chemotherapy at home to try and prevent any remaining cancer cells from reproducing and taking over again. Niko visits his local hospital, Colchester General Hospital weekly for blood tests and every four weeks for IV chemotherapy and steroids pulses. He now only

Niko Spiderman

attends Great Ormond Street Hospital every 3 months for further checks and treatment which includes lumbar punctures and infused chemotherapy into the spinal cord and fluid around the brain.

The family first came across Spread a Smile in late Spring 2022 when a member of the hospital play team gave Niko a Spread a Smile ‘walking balloon’. Niko was having an awful day, fasting before surgery and the balloon made such a difference, lifting his spirits and giving him something exciting to focus on.

As Mum Katie said: “As soon as Niko saw the balloon he started to smile. I googled Spread a Smile, as there was a sticker on the balloon, to find out more about them and got straight in touch when I saw all of the different activities they offer that I knew might help Niko. Niko started having one-to-one virtual sessions with Spread a Smile Entertainers over the summer holidays including magicians and fairies. He particularly loved the magicians who made him smile, laugh and shout at the screen every time.”

“When you are going through such a hard, draining and emotional time, seeing your child smile, even if very briefly, can mean everything.”

Please donate to our Christmas Appeal to help ensure we can continue to support children like Niko and his family, spreading a smile when it’s needed most.

Just £25 could help pay for a child to meet Santa in our virtual grotto and receive a special gift

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